New study led by Dr Yonat Rum reveals that sibling relationships in families with a child diagnosed with autism share significant similarities with those in families with typical children from the children’s perspectives, showing no major differences in warmth, conflict, rivalry, or relative power. However, mothers perceive unique challenges, reporting less warmth and closeness but also less conflict among siblings. This discrepancy between children’s and mothers’ views highlights the need for a holistic approach in supporting these families, addressing both the typical-like experiences of siblings and the nuanced challenges perceived by mothers, to ensure comprehensive and empathetic support.
Dr Yonat Rum was the recipient of a British Friends multi-year scholarship in support of her postdoctoral research at the Autism Research Centre at the University of Cambridge. We wish her continued success in her important work.
Dr Yonat Rum, School of Education, photo by Bruno Charbit
A recent study led by Dr Yonat Rum from the Seymour Fox School of Education at the Hebrew University and the University of Cambridge with Professors Ella Daniel and Esther Dromi along with student Yael Armony from Tel Aviv University and Prof Ditza A. Zachor, Head of the Autism Center at the Shamir (Assaf Harofeh) Medical Center and Tel Aviv University provides fresh insights into the dynamics of sibling relationships in families with a child diagnosed with autism. This research explores the unique perspectives of both mothers and siblings, unveiling fascinating findings on how these relationships compare to those in families with typical children.
The study included twenty-nine children, with an average age of 8.78 years, who have younger siblings diagnosed with autism, along with their mothers. This group was compared to forty-six children, averaging 9.12 years of age, with younger typical siblings, and their mothers. Utilising a mixed-methods approach of both quantitative and qualitative data collection and analysis, both groups completed the Sibling Relationship Questionnaires and participated in interviews, offering a comprehensive view of their sibling dynamics.
According to the children’s reports, sibling relationships across both groups showed remarkable similarities. There were no significant differences in overall warmth, conflict, rivalry, or relative power between siblings, regardless of the presence of autism. This suggests that, from a child’s perspective, having a sibling with autism may not drastically alter the fundamental aspects of their relationship.
The mothers’ perspectives revealed a different layer of complexity. Mothers of children with autism reported less warmth and closeness between their children and, surprisingly, less conflict compared to mothers of typical children, highlighting nuanced challenges and decreased involvement in these sibling relationships.
Additionally, the study found more disagreement between mothers and children in the autism group than in the typical group. Both mothers and children in the autism group reported less intimacy and fewer quarrels between siblings. Interestingly, the qualitative analysis showed that siblings tended to focus on their present experiences, while mothers considered the broader processes in sibling relationships. Discussions in the autism group often referenced various specificities without explicitly mentioning “autism.”
Dr Yonat Rum emphasises the importance of these findings, stating, “Our research sheds light on the nuanced experiences of siblings and mothers in families where autism is present. Understanding these dynamics is crucial for providing better support and resources to these families.”
Autism spectrum conditions affect a significant portion of the population, with recent estimates indicating that 1 in 36 children in the United States are diagnosed with autism. This translates to millions of families worldwide grappling with the unique challenges that come with raising a child on the autism spectrum. The impact of autism extends beyond the diagnosed individual, affecting the entire family unit. Studies have shown that parents of autistic children often experience higher levels of parental stress compared to parents with typically developing children and siblings of autistic children were also studied mainly as at risk for various psychological outcomes. At the same time, research has shown that for autistic children, growing up with typically developing siblings is associated with better social-communicational skills and that growing up as a sibling of an autistic child has a positive effect on the development of cognitive empathy. For autistic children and their families, siblingship is, thus, an essential and meaningful resource, and it is important to learn about the quality of this meaningful relationship.
This study underscores the understanding of these widespread effects and the need for a holistic approach in supporting families with autistic children, considering the diverse experiences and perspectives within these families. It highlights the importance of understanding both the typical-like experiences of siblings and the unique challenges perceived by mothers, ensuring comprehensive support for these families.
Methodology: Data was collected in Israel from Hebrew-speaking participants, and initial findings were published in Hebrew in 2020 as part of graduate and post-graduate works at Tel Aviv University. Further analysis and synthesising the qualitative and quantitative findings in a mixed methods approach resulted in the current paper published in JADD this year. The mixed methods (quantitative AND qualitative analysis) multi-informant (mothers’ reports AND children’s reports) examination of what is similar and different in the relationships of autistic children and their siblings compared with typical siblingships has added to the literature by revealing not only differences and similarities in the sibling relationships but also in mothers’ and children’s perspectives.
Data/Statistical Analysis
The research paper titled “Sibling Relationships in Families of Autistic and Typical Children: Similarities and Differences in the Perspectives of Siblings and Mothers” is now available in Journal of Autism and Developmental Disorders and can be accessed at https://doi.org/10.1007/s10803-023-06222-0.
Researchers:
Yonat Rum, Ditza A. Zachor, Yael Armony, Ella Daniel, Esther Dromi
Institutions:
1. The Hebrew University of Jerusalem
2. University of Cambridge
3. Shamir (Assaf Harofeh) Medical Center
4. Tel Aviv University
Funding
This project is supported through the generosity of the Azrieli Foundation, by an Azrieli Fellowship to Y.R.
The Hebrew University of Jerusalem is Israel’s premier academic and research institution. With over 23,000 students from 90 countries, it is a hub for advancing scientific knowledge and holds a significant role in Israel’s civilian scientific research output, accounting for nearly 40% of it and has registered over 11,000 patents. The university’s faculty and alumni have earned eight Nobel Prizes, two Turing Awards a Fields Medal, underscoring their contributions to ground-breaking discoveries. In the global arena, the Hebrew University ranks 86th according to the Shanghai Ranking. To learn more about the university’s academic programs, research initiatives, and achievements, visit the official website at http://new.huji.ac.il/en